Forskning ved Københavns Universitet - Københavns Universitet

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Caregiver burden and health-related quality of life amongst caregivers of out-of-hospital cardiac arrest survivors

Publikation: Bidrag til tidsskriftTidsskriftartikelForskningfagfællebedømt

  • Mattias Bohm
  • Tobias Cronberg
  • Kristofer Årestedt
  • Hans Friberg
  • Hassager, Christian
  • Jesper Kjærgaard
  • Michael Kuiper
  • Niklas Nielsen
  • Susann Ullén
  • Johan Undén
  • Matt P. Wise
  • Gisela Lilja

Aims: To describe burden and health-related quality of life amongst caregivers of out-of-hospital cardiac arrest survivors and explore the potential association with cognitive function of the survivors. Caregivers of patients with ST-elevation myocardial infarction were used as controls. Methods: Data were collected from the cognitive substudy of the Targeted Temperature Management-trial. Caregiver burden was assessed with the 22-item Zarit Burden Interview, with scores ≤20 considered as no burden. Health-related quality of life was assessed with the SF-36v2®, with T-scores 47–53 representing the norm. Cardiac arrest survivors were categorized based on the results from cognitive assessments as having “no cognitive impairment” or “cognitive impairment”. Results: Follow-up 6 months post event was performed for caregivers of 272 cardiac arrest survivors and 108 matched myocardial infarction controls, included at an intended ratio of 2:1. In general, caregivers of cardiac arrest survivors and controls reported similar caregiver burden. The overall scores for quality of life were within normative levels and similar for caregivers of cardiac arrest survivors and control patients. Compared to those with no cognitive impairment, caregivers of cognitively impaired cardiac arrest survivors (n = 126) reported higher levels of burden (median 18 versus 8, p < 0.001) and worse quality of life in five of eight domains, particularly “Role-Emotional” (mean 45.7 versus 49.5, p = 0.002). Conclusions: In general, caregivers of cardiac arrest survivors and myocardial infarction controls reported similar levels of burden and quality of life. Cognitive outcome and functional dependency of the cardiac arrest survivor impact burden and quality of life of the caregiver.

OriginalsprogEngelsk
TidsskriftResuscitation
Vol/bind167
Sider (fra-til)118-127
Antal sider10
ISSN0300-9572
DOI
StatusUdgivet - 2021

Bibliografisk note

Funding Information:
This work was supported by The European Union Interreg IVA programme, The Swedish Heart and Lung Association, the Sk?ne University Hospital Foundations, the Gyllenstierna-Krapperup Foundation, the Academy of Health Care Sciences at Sk?ne University Hospital, the Swedish National Health System (ALF), the County Council of Sk?ne, the Swedish Society of Medicine, the Koch Foundation, the Swedish Heart-Lung Foundation, AFA Insurance Foundation, the Hans-Gabriel and Alice Trolle-Wachtmeister Foundation for medical research, the Segerfalk Foundation, the Tryg Foundation (Denmark) and the Hallands Hospital funds for research. The study sponsors were not involved in the study design, in the collection, analysis, and interpretation of the data, in the writing of the manuscript, or in the decision to submit the manuscript for publication.

Funding Information:
This work was supported by The European Union Interreg IVA programme, The Swedish Heart and Lung Association, the Skåne University Hospital Foundations, the Gyllenstierna-Krapperup Foundation, the Academy of Health Care Sciences at Skåne University Hospital, the Swedish National Health System (ALF), the County Council of Skåne, the Swedish Society of Medicine, the Koch Foundation, the Swedish Heart-Lung Foundation, AFA Insurance Foundation, the Hans-Gabriel and Alice Trolle-Wachtmeister Foundation for medical research, the Segerfalk Foundation, the Tryg Foundation (Denmark) and the Hallands Hospital funds for research. The study sponsors were not involved in the study design, in the collection, analysis, and interpretation of the data, in the writing of the manuscript, or in the decision to submit the manuscript for publication.

Publisher Copyright:
© 2021 The Author(s)

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