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Making Access to a Population of Bodies in the Name of Autonomy

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Developments within biotechnology are of a pace and complexity that challenge the predictability at the foundation of legislation, i.e. the possibility for politicians to foresee pitfalls and hazards, and design legislation accordingly. The lack of predictability is not only a challenge for the legislature, but also for the citizen, who is to consent to the new biotech services offered by the health authorities. How can one give informed consent to a measure, the consequences of which is hard to predict? Does the uncertainty and lack of predictability mean that paternalism slipped back in as a 'self-selected' responsiveness to the rhetoric of the health regime? Recently, Denmark has taken another step in the direction of voiding autonomy of actual value by rendering genetic analysis contingent on agreeing that the resulting data may be stored in the recently established National Genome Centre, and reused for research unless the patient opts out.
OriginalsprogEngelsk
TidsskriftEuropean Journal of Health Law
Vol/bind25
Udgave nummer5
Sider (fra-til)555-572
Antal sider17
ISSN0929-0273
StatusUdgivet - 2018

ID: 203566174